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Worldwide Resources

In an effort to help all those affected by neurofibromatosis, the NF Network has compiled a list of international support organizations across the world. 
 

Turkey-Neurofibromatosis (NF) Dernegi

Website: http://www.nf.org.tr/

Turkey-NF Turkey

Website: http://www.nf.hacettepe.edu.tr/

Egypt-Dr Abel Hay Mansour Arab republic of Egypt

Website: http://www.neurofibromatosis-network.org/en/

Mozambique-Associaçao Médica de Moçambique

Website: http://www.neurofibromatosis-network.org/en/

Nigeria-NF Nigeria-Frances Onwordi

Website: http://www.neurofibromatosis-network.org/en/

South African NF Association

Website: http://www.neurofibromatosis-network.org/en/

India-NF India-Prem John

Website: http://www.neurofibromatosis-network.org/en/

Maylasia-Yvonne Foong Writer & Speaker

Website: http://www.yvonnefoong.com/about-the-author/neurofibromatosis/

Middle East-United Arab Emirats

Website: http://www.neurofibromatosis-network.org/en/

Philippines-Neurofibromatosis Friends

Website: http://www.facebook.com/nffphilippines

Phillippines Children's Medical Center

Website: http://www.neurofibromatosis-network.org/en/

Children's Tumour Foundation (NF Australia Ltd.)

Website: http://www.nfaa.org.au

New Zealand Neurofibromatosis NZ

Website: http://www.nfnz.org.nz/

Victoria-Murdoch Children's Research Institute:Royal Children’s Hospital

Website: https://www.mcri.edu.au/

Western Australia-Neurofibromatosis Association of WA

Website: http://www.connectingup.org/organisation/neurofibromatosis-association-of-western-australia-inc

Austria-NF Kinder

Website: http://www.nfkinder.at/

Belgium-NF Kontakt

Website: http://wp.nfcontact.be/wp/

Bulgaria-Alexanders University Hospital

Website: http://www.neurofibromatosis-network.org/en/

Croatia-Clinic for Sick Children Sabol

Website: http://www.neurofibromatosis-network.org/en/

Czech Republic-Dr Alena Petrakova

Website: http://www.neurofibromatosis-network.org/en/

Denmark-Dansk Forening for NF

Website: http://www.nfdanmark.dk/

Finland-NF Finnish Association

Website: http://www.snf.fi/

France-Association Kokcinelo

Website: http://www.kokcinelo.fr/

France-Association Neurofibromatoses et Recklinghausen

Website: http://www.anrfrance.fr/anr/

France-Ligue Française Contre la Neurofibromatose

Website: http://neurofibromatose.chez.com/

Germany-Bundesverband Neurofibromatose e.V.

Website: http://bv-nf.de/

Germany-Nothing is Forever

Website: http://www.nothing-is-forever.de/

Holland-NF Info

Website: http://home.kpn.nl/ajeam.quaedvlieg/

Holland-NF Verening

Website: https://neurofibromatose.nl/home

Hungary-NF Hungary

Website: http://www.neurofibromatozis.com/kezdolap

Ireland-Neurofibromatosis Association of Ireland

Website: http://www.nfaireland.ie/

Italy-A.N.F. Associazione Neuro Fibromatosi

Website: http://www.neurofibromatosi.org/

Italy-Associazione Io Ci Sono

Website: http://www.associazioneiocisono.it/

Italy-Associazione LINFA

Website: http://www.associazionelinfa.it/v2/

Netherlands-European Neurofibromatosis Group

Website: http://enfg.eu/

Netherlands-NF Kontakt

Website: http://wp.nfcontact.be/wp/

Netherlands-NFVN Neurofibromatose Vereniging Nederland

Website: https://neurofibromatose.nl/home

Norway-FRAMBU Resource Center for Rare Disorders

Website: http://www.frambu.no/kontakt

Norway-Norsk Forenig for Nevrofibromatose

Website: http://nffnf.no/

Portugal-Lormedico Blogspot

Website: http://lormedico.blogspot.com.br/

Portugal-Portuguese Association of Neurofibromatosis

Website: http://www.apnf.eu/apnf.htm

Romania-Neurofibromatoza

Website: http://www.neurofibromatoza.sk/

Spain-Asociacion Catalana de les Neurofibromatosis

Website: http://www.acnefi.org/

Spain-Asociación-Española-de-Neurofibromatosis

Website: http://www.neurofibromatosis.es/

Spain-Cantabria Association for Neurofibromatosis

Website: http://www.nfcantabria.unican.es/portada.asp

Sweden-NF-League in Sweden

Website: http://www.nf-forbundet.se/

Switzerland-Romand Entraide Group for Neurofibromatosis

Website: http://www.gerneurofibromatosis.ch/

Switzerland-Schweizerischen Neurofibromatose-Vereinigung

Website: http://www.nf-forbundet.se/https://www.neurofibromatose.ch/

United Kingdom-Neuro Foundation

Website: http://www.nfauk.org/

CTF-Children's Tumor Foundation

Website: http://www.ctf.org/

Neurofibromatosis(NF) Network

Website: http://www.nfnetwork.org/

Canada-British Columbia Neurofibromatosis Foundation

Website: http://www.tumourfoundation.ca/

Canada-L’Association de la Neurofibromatose de Quebec

Website: http://anfq.org/index.php/en/

Canada-Manitoba Neurofibromatosis Support Group

Website: https://mbnf.ca/

Canada-Neurofibromatosis Society of Ontario

Website: http://www.nfon.ca/

Canada-NL Neurofibromatosis

Website: https://nlnf.ca/

Argentina-Division Neurocirugia Hospital De Clinicas

Website: http://hcneurocirugia.com.ar/?p=224

Argentina-Neurofibromatosis Association of Argentina

Website: http://www.aanf.org.ar/

Brazil-APAE of Unai

Website: http://unai.apaebrasil.org.br/

Brazil-Associação Mineira de Apoio aos Portadores de Neurofibromatose

Website: http://www.amanf.org.br/

Columbia-All About Neurofibromatosis

Website: http://www.nfcol.net/

Mexico-Amigos Neurofibromatosis México Facebook

Website: https://www.facebook.com/AMIGOSNF/

Mexico-Neurofibromatosis Mexico

Website: http://amnf.mx.tripod.com/

Uruguay-Dr. Soraya Reyno Reissing

Website: http://www.neurofibromatosis-network.org/en/

 

For additional countries not listed, check out this Network of Countries website.

If you are aware of an NF organization or support group which is not currently listed here, email us at admin@nfnetwork.org.