Intro to Webinar and Review of NF1 Resources with Dr. Maria Acosta 1.29.18
Please join Maria Acosta, M.D., a neurologist who specializes in Neurofibromatosis Type 1 (NF1), for bimonthly webinars discussing practical topics that will help you and your child! The purpose of this webinar series is to present on topics that are important to families of children with NF1.
Using apps to help with NF-related learning disabilities
In this webinar, you will learn how certain apps can be used to help with executive functioning challenges. We will demonstrate and answer questions about apps that focus on note-taking, organization, energy management, and goal-setting. Presented by Michelle Ranae Wild, President/CEO of Brain Education Strategies and Technology, Inc.
Affordable Health Care Act
Cheryl Fish Parcham is Deputy Director of Health Policy at Families USA, a national non-profit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Here you will learn more about the new options for coverage and how to qualify for assistance.
Techniques to Cope w/Pain
Many individuals with NF have chronic pain that can interfere with their daily lives.While medications sometimes help, they often offer only partial relief and they can have significant side effects. In recent years, more and more people are turning to psychological techniques to help them deal with physical pain.
NF Needs Your Local Voice
Kim Bischoff, Executive Director of the NF Network and Katie Vanlandingham, from Van Scoyoc Associates, share their knowledge to help you advocate for funding for NF research to your local representatives.
Genetics of NF2
"The Genetics of NF2", presented by renowned UK Geneticist, Dr. Gareth Evans. Dr. Evans practices at St. Mary's Children's Hospital in Manchester, where he is also is the head of the NF2 Clinic. He has a wealth of experience with NF2 and currently see's most of the NF2 patients in the UK. He has published numerous articles on his research on the Genetics of NF2.