NF California Webinar: NF Studies and Clinical Trials in California
Please join NF California for this special opportunity to hear representatives of California hospitals, clinics and companies conducting research on different conditions associated with Neurofibromatosis.
Anxiety with Neurofibromatosis
When it comes to anxiety, coping is good. Prevention is better. Brandon Tessers (LCPC) of Effective Artistry speaks about anxiety, executive functioning and the struggles that come from being different. Brandon also shares useful ways to think of anxiety, coping techniques, and frameworks that can help locate the source of the anxiety so you can prevent it altogether.
ADHD, Learning Differences, and Autism in NF1
Dr. Green is a physician-scientist and a child psychiatrist who works primarily with children with known genetic conditions and “neurogenetic syndromes” such as Noonan syndrome and other Rasopathies. Her presentation focuses on neurodevelopmental conditions in NF1. Dr. Green covers the presentation of these conditions in the context of NF1, findings from recent studies in NF1, and approaches to treatment.
SpringWorks Therapeutics and the ReNeu Trial
SpringWorks is a biopharmaceutical company whose mission is to develop life-changing medicines for patients with severe rare diseases and cancer. They are conducting a Phase 2b clinical trial (“ReNeu”) with their investigational MEK inhibitor called mirdametinib in children and adults with plexiform neurofibromas. Hear Dr. Mary Smith and her team present on an overview of NF and their ReNeu trial.
NF Care in California - Meet Your Providers
NF California presents an educational opportunity to connect the California NF community with experienced NF physicians, doctors, and specialists in regions across the state. Speakers informed the attendees of locations available to them for their NF care, introduced them to their team members, and shared clinical trial opportunities conducted at their sites.
NF Central Plains' Night of Magic
NF Central Plains and the NF Network host Keith Leff, "The Magically Memorable Magician," as we celebrate NF Awareness Month with a virtual magic show alongside members of our NF community. Friends, families, and supporters joined us from across the U.S. and Canada to enjoy a fun and entertaining evening.