Jeff Leibow shares personal mission
Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.
Washington University professor receives $3.5M grant
David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1.
Portraits and pasta
Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”
Contributing to health care reform
Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.