From the Network

The word is neurofibromatosis

The word is neurofibromatosis

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.

In The News

Broadway stars raise funds for NF

Jeff Leibow has called upon Broadway friends including Chad Kimball and Mary Callanan to appear May 8 at a concert at New York’s SubCulture nightclub to raise money for the Neurofibromatosis Network.

Research

Washington U professor receives $3.5M grant

David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1.

Event Highlight

Symposium leaves attendees hopeful

More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. 

People Spotlight

NF mother on a mission

Melanie Leach raises NF awareness by organizing walks and bake sales in addition to traveling to D.C. each year to meet congressional staff.


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