Join host Shane Smith as he interviews Dr. Frank Buono and they discuss Dr. Buono's pioneering research on pain management, including pain management strategies, importance of mindfulness and a multidisciplinary approach to treatment.

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) at Johns Hopkins University seeks participants study that will use a specialized 3D photography system to take whole-body pictures once a year for up to five years to track the progression of cutaneous neurofibromas (cNF) over time.

#NFStrong events take place in cities and communities across the country. Learn more about our first Ducky Dash in May, our ongoing #NFStrong 5K's, and how you can get involved this summer and fall!

The Gilbert Family Foundation and Henry Ford Health are working together to learn more about neurofibromatosis to help patients like Tracy Irby. Neuro-oncologist Dr. Tobias Walbert believes the work that will take place at the Nick Gilbert Neurofibromatosis Research Institute will open new doors for patients living with NF.