What began in 2020 as the NF Tennessee Laptop Giveaway Program has grown into a broader initiative that now includes Art Supplies and Musical Instruments Grants, added in 2023. Together, these programs have supported more than 30 recipients, each with their own story of perseverance and success. From personal achievements to creative milestones, the impact has been inspiring.

New research is offering hopeful possibilities for children with neurofibromatosis (NF) who develop brain tumors, particularly common low-grade tumors like pilocytic astrocytomas. Scientists have discovered that these tumor cells can take advantage of a natural brain chemical called glutamate—normally used for communication between nerve cells—to fuel their own growth.

The Ducky Dash is back—and bigger, brighter, and more joyful than ever. Now in its third year, this one-of-a-kind event invites participants to lace up their running shoes, embrace a little silliness, and rally around a meaningful cause: supporting individuals and families affected by neurofibromatosis (NF).

At 38 years old, Joey Bean has spent a lifetime navigating the challenges of Neurofibromatosis Type 1 (NF1). Born and raised in Southern California, Joey grew up with tumors on his body—many hidden beneath clothing, but never far from his mind. Like many in the NF community, he learned early on how to manage not just the physical effects of NF1, but also the social challenges.