In The News

Harry Potter star's child diagnosed with NF1

Tansy Smethurst, whose mum Rakie Ayola plays Hermione Granger in the Harry Potter play, was on holiday when she suddenly developed spots on her body and needed to be rushed to hospital.

Patriots tight end makes special visit

Make-A-Wish transformed 7-year-old Ryan Feeney's backyard into a New England Patriots-themed football field, complete with Patriots tight end Rob Gronkowski.

Tim Tebow meets fan with NF during game

During a St. Lucie Mets game against the Charlotte Stone Crabs late last month, Tim Tebow made a young fan’s day.

Make-A-Wish throws party for NF teen

15-year-old Ayrianna Day Chief was treated a Hollywood party complete with performers and paparazzi courtesy of the Make-A-Wish Foundation.

I lost my voice, but help others find theirs

Being blind wasn't going to stop Alex Hubbard from becoming a journalist, but his NF2 diagnosis almost did.

Broadway stars raise funds for NF

Jeff Leibow has called upon Broadway friends including Chad Kimball and Mary Callanan to appear May 8 at a concert at New York’s SubCulture nightclub to raise money for the Neurofibromatosis Network.

Jeff Leibow shares personal mission

Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.

Live life to the fullest

The trophies and scars Leah Manth has collected during her lifetime aren’t just rewards for participating in sports.

NF found in 15th century

A Renaissance painting in Mantua, Italy contains the portrait of a maidservant with neurofibromatosis.

Learning to love yourself

As a teenager, her mother told her, “Only someone kind would want to be with you.” Then, in her early 20s, Janet Miller began to notice small bumps on her skin.

Why this boy chose not to have his facial tumors removed

Ethan D’Amato was born with a number of facial tumors, but he chose to not have them removed rather than risk losing his ability to smile and laugh.


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