Symposium helps patients connect with experts
During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.
Saddle Club raises money for NF research
The Galesburg Boots and Saddle Club raised more than $2,000 for the Neurofibromatosis Network during its Hoof N It for NF event.
NF Hope Concert expands to NYC
When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.
Symposium leaves attendees hopeful
More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3.
Portraits and pasta
Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”
Rare disease day
The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.
North Carolina company rallies around local man
Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.
Boardman walk raises NF awareness
The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.
KC community raises funds for medical research
Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.