Event Highlights

NF Hope Concert expands to NYC

When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.

Symposium leaves attendees hopeful

More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. 

Portraits and pasta

Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”

Rare disease day

The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.

North Carolina company rallies around local man

Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.

Boardman walk raises NF awareness

The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.

KC community raises funds for medical research

Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.


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