NF California Co-Host Ask the Doctor Event
NF1 patients had the opportunity to learn about the City of Hope NF Specialists scope of practice and ask the doctors questions.
NF Walk Celebrates 10 Years
Following it's 10th year, the #NFStrong walk in Kansas City, MO reflects on the past and looks ahead to the future.
Stone Lotus plays at Inaugural Docs Rock for NF concert
On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert
11th annual Cure NF fundraiser at Buffalo Marathon
The Run4Leah/CureNF Team will participate in its 11th annual Cure NF fundraiser.
NF Central Plains: iNForms
The event drew people from Oklahoma, Missouri and Kansas who wanted to learn.
Concert raises NF awareness, funds
Rock Out to Knock Out NF 2.0, NF North Central’s second annual concert fundraiser, brought in more than $55,000 this past November.
Orlando families host year-end walk
The Neurofibromatosis Network had this year's final #NFStrong Walk for Neurofibromatosis in sunny Orlando, FL.
Symposium helps patients connect with experts
During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.
Saddle Club raises money for NF research
The Galesburg Boots and Saddle Club raised more than $2,000 for the Neurofibromatosis Network during its Hoof N It for NF event.
NF Hope Concert expands to NYC
When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.
Symposium leaves attendees hopeful
More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3.
Portraits and pasta
Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”
Rare disease day
The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.
North Carolina company rallies around local man
Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.
Boardman walk raises NF awareness
The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.
KC community raises funds for medical research
Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.