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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

NF Awareness Campaign

May is Neurofibromatosis Awareness Month!

Did you know that Neurofibromatosis affects more people than Cystic Fibrosis, Tay Sachs, Huntington's Disease, and Muscular Dystrophy combined, yet most people have never heard of it? We like to call it "the most common disorder you have never heard of."

We can change that! This year, we're asking you to help us spread the word and raise awareness for neurofibromatosis by joining our #ConnectingNF campaign! Our goal is to spread the word “neurofibromatosis” across social media so that it is known in every household.

Here's how you can help!

1.  Our goal is to connect with even more NF families and individuals around the world. This reminds us that we are all on this NF journey together.  Join us by spreading NF awareness by using the hashtag #ConnectNF on Facebook and Twitter, we want to hear YOUR NF story and what spreading NF awareness means to you!

2.  Share the NF Network’s #ConnectingNF social media posts. We are sharing the beauty stores that have been created by children who are participating in the Sketch NF program.   

3.  Download the images below and share them to your social media account using the hashtags #ConnectingNF and #NFNetwork 


4.  Help the NF Network create awareness by sharing the posts from the NF Network Facebook page 

5.  The easiest way to help is to donate. As we continue to provide essential programs and resources to the NF community, the NF Network needs your help more than ever. Your contribution can make a difference now by providing crucial information to our NF community. Click the link below to give a gift today.