Member Stories

From the time of diagnosis individuals affected by NF and their families experience a multitude of feelings, concerns, and questions.  While each person’s experience is unique we invite you to read the following stories, where you may be able to identify with common themes of emotions.  Learn how others have thrived with the diagnoses of NF.

We also encourage you to visit Inspire which connects patients, families, friends, caregivers and health professionals for health and wellness support.  NF, Inc. believes no one should have to go it alone; we all need a safe place to talk, where we can help one another.