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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

California-Sinai

Cedars-Sinai Birth Defect Center


Los Angeles, CA
310-423-9914, 310-967-1644

Physicians: Stefan Pulst, MD; Julie Korenberg, MD
Specialty: NF1, NF2
Facility Type:

 

Cedars-Sinai Medical Office Towers
 

Los Angeles, CA
310-659-6628

Physicians: William Slattery, MD; Hamid R. Djalilian, MD
Specialty: NF2
Facility Type:

 

House Clinic


Los Angeles, CA
213-483-9930

Physicians: Derald E. Brackmann, MD; Gregory P. Lekovic, MD, PhD; Marc S. Schwartz, MD; William H. Slattery, MD
Specialty: NF2
Facility Type: NF2 Major Medical Center

 

Loma Linda University Children's Hospital

 

Pediatric Neurology, Chronic Pain and Headache Clinic
San Bernadino, CA
909-835-1810

Physicians: Stanford Shu, MD, Pediatric Neurologist
Specialty
Facility Type:

 

Lucile Packard Children's Hospital Stanford

 

Division of Pediatric Neurosurgery
Stanford, CA
650-497-8775

Physicians: Michael Edwards, MD, FACS, FAAP, FANS; Pediatric Neurosurgeon
Specialty: NF1, NF2, Children, Young Adults Under 25
Facility Type:

 

Stanford University Medical Center


Stanford, CA
650-723-5281

Physicians: Robert Jackler, MD, Otolaryngologist
Specialty: NF2
Facility Type:

 

University of California, San Francisco

 

Department of Neurological Surgery
San Francisco, CA
415-353-3998

Physicians: Christopher P. Ames, MD
Specialty: NF1, NF2
Facility Type:

 

University of California, Davis M.I.N.D. Institute

 

NF/Ras Pathway Genetics Clinic
Sacramento, CA
916-703-0317

Physicians: Katherine Rauen, MD, PhD, Dept. of Pediatrics; Elizabeth Boyd 916-703-0317 for Scheduling Appointments; Liga Bivina 916-703-0371 for general patient related questions
Specialty
Facility Type: Multi-Disciplinary

 

University of California, Los Angeles

 

Dept. of Pediatrics, Division of Medical Genetics
Los Angeles, CA
310-206-6581

Physicians: Julian Martinez, MD, PhD; Vivian Chang, MD 
Specialty: NF1, NF2, Adults, Children
Facility Type:

 

USC Norris Cancer Center

 

Neuro-Genetic Clinic
Los Angeles, CA
323-865-3980

Physicians: Contact Aida Lozada, Clinical Research Manager for appointment information
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type:

 

Stanford University Medical Center Neurogenetics/NF Clinic

Neurogenetics Oncology Program
Stanford, CA
650-736-0262

Physicians: Steven Chang, MD, Neurosurgeon; Contact Person: Vee Vo, 650-736-0262 or veevo@stanfordmed.org
Specialty: NF1, NF2
Facility Type:

 

Cedars-Sinai Pediatrics Medical Genetics Institute

 

Children's Health Center
Los Angeles, CA
310-423-9914 Option 4

Physicians: Sulagna Saitta, MD, Pediatrics; Leslie Raffel, MD, Pediatric and Adults 310-423-9914, Option 4; Pediatrics 310-423-7779
Specialty: NF1, NF2 Primarily Pediatric but will see Adults
Facility Type:

 

Children's Hospital Los Angeles
 

Los Angeles, CA
323-361-2471

Physicians: Tena Rosser, MD, Neurology; Linda Randolph, MD; Genetics
Specialty: NF1, NF2, Children
Facility Type:

 

Children's Hospital Orange County
 

Orange, CA
714-228-3500 x355

Physicians: Touran Zadeh, MD, Genetics; Neda Zadeh, MD, Genetics
Specialty: NF1, NF2, Children
Facility Type:

 

University of California, Los Angeles

 

Dept. of Head and Neck Surgery
Los Angeles, CA
213-273-8025

Physicians: Marco Giovannini, MD, PhD, Professor in Residence; Contact: Roberta Leyvas 213-273-8025; Fax 213-989-6704
Specialty: NF2
Facility Type:

 

University of California, San Francisco

NF/Ras Pathway Clinic
San Francisco, CA
415-476-2757

Physicians: Joseph Shieh, MD, PhD, Genetics NF Clinic Contact: Janelle Arguiza 415-514-0838, Fax 415-476-9976
Specialty
Facility Type:

 

University of California, San Francisco

Dept. of Neurological Surgery
San Francisco, CA
415-353-9360

Physicians: Christopher P. Ames, MD; Contact: Kelly Priester, Clinical Assistant 415-353-9360
Specialty: NF1, NF2
Facility Type:

 

Lucile Packard Children's Hospital

Division of Medical Genetics
Palo Alto, CA
650-721-5804

Physicians: David Stevenson, MD, Medical Genetics
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type:

 

For more information please contact:

NF California
P.O. Box 1234
Vacaville, CA 95696
707.469.0467

www.nfcalifornia.org
info@nfcalifornia.org