Webinars
“NF2 and Facial Reanimation”
If you were not able to attend our webinar “NF2 and Facial Reanimation” with speaker Tessa Hadlock, MD, Director, Facial Nerve Center, Massachusetts Eye and Ear Infirmary you can read, print or download the full transcript from the webinar.
NF2 and Facial Reanimation Transcript
Slides from Mara Wernick Robinson, PT, MS, NCS presentation on facial massages and facial movement/motor retraining are also available for viewing and printing.
Mara Wernick Presentation Slides
“NF1 and School Issues”
Watch our all new webinar “NF1 and School Issues”, presented by James Tonsgard, MD, Director, University of Chicago Ambulatory Program for NF. Dr. Tonsgard is the Director of one of the largest NF Clinics in the country. He will be discussing the spectrum and diagnosis of learning disabilities and cognitive issues that can be associated with NF1. He will discuss how parents of children with these disabilities can help their child; what parents can tell teachers and school personnel about their child’s NF1. Dr. Tonsgard is part of the NF Consortium which is conducting a clinical trial on learning disabilities in children with NF.
“Talk to your Congressman about NF Research”
If you were not able to attend our webinar “Talk to your Congressman about NF Research”, or would like to use it as a reference and guide when contacting your representatives, you can view it here in its entirety.
“NF2 Webinar with Scott Plotkin, MD”
NF Network is pleased to present an all new NF2 webinar. You don’t want to miss this webinar with guest presenter, and NF2 expert Dr. Scott Plotkin, MD, PhD. Just a couple of the topics Dr. Plotkin will discuss are advancements in NF2 research and the genetic inheritance of NF2. To view this video you will need Windows Media Player.
“10 Things Everyone Should Know About Their NF1” presented by Doug Stewart, MD, Investigator, Clinical Genetics Branch Division of Cancer Epidemiology and Genetics National Cancer Institute. In this webinar Dr. Stewart offers practical advice to people living with NF1, especially in working with doctors to get the best care possible. He discussed different types of pain, warning signs, rare (and common) problems, and when to seek specialized help. He ends with a brief overview of on-going research projects in NF1 at NIH and elsewhere. For this video, you will need the Veoh web player. It is quick and easy to download.
