Booklets

These booklets are available by contacting the national NF, Inc. office.

Understanding Neurofibromatosis: An Introduction for Patients and Parents
James H. Tonsgard, MD
“Understanding Neurofibromatosis” contains helpful information for anyone interested in learning about neurofibromatosis.  This pamphlet explains what NF is, what causes NF, what families will need to do about it, and where to get help.

A Parent’s Guide to the Learning Disabilities associated with Neurofibromatosis Type 1
BC Neurofibromatosis Foundation
This is a unique resource for parents of children of all ages with NF1 and learning disabilities.  Whether your child is in kindergarten or in high school, this guide will address his/her educational needs.  Among areas covered are cognitive functioning, social challenges, motor delays and attention problems.  There is an explanation of NF1 for teachers.

NF Buddies
NF, Inc. California
“NF Buddies” is a children’s book, which explains NF at a child’s level, very matter-of-factly.  There are photos on every page showing what children may experience as part of their NF1 care.  This booklet is also great for friends, relatives, teachers or anyone unfamiliar with NF.  Also available in Spanish.

Understanding your Child’s Diagnosis of Neurofibromatosis: A Guide for Parents
Washington University School of Medicine in St. Louis
As a parent you want what is best for your child.  Finding out that a child has NF1 can be frightening.  This booklet provides basic information about the diagnosis of NF1 and the ways it may affect your child.  It is designed to help you understand your child’s specific healthcare needs and relieve the inevitable concerns of a new diagnosis.