DOODLE DAY GOES LIVE MAY 10!!!
May 06 2012
NF Awareness Challenge!
April 29 2012
Posted in Events - Current, News
May is NF awareness month! Our goal this month is to encourage people to share their experiences with Neurofibromatosis! 
Registration for Great Steps Kansas in now open!
February 28 2012
Posted in Events - Current, NF Walks/Great Steps
Register now for the 4th annual Great Steps for NF Walk in Kansas City, MO
We Support Michael, You Can Too!
April 26 2012
Posted in Events - Current, NF Walks/Great Steps, Run4NF
We are searching for individuals who would like to support Michael Freeman in his quest to take on the Ironman!
NF2 Cruise
April 24 2012
Posted in Events - Current
Join the NF2 Crew on a fun-filled NF2 Cruise to the Eastern Caribbean!
NF Inc. Northeast Steps2Cure NF Walk and Road Race
April 09 2012
Posted in Events - Current, NF Walks/Great Steps
Sunday, October 14th is the date for the 6th Annual Steps2Cure NF walk/run.
NF, Inc. California Sunrise Run
April 09 2012
Posted in Events - Current, NF Walks/Great Steps
The Sunrise Run features a half marathon, 10k run and 5k run/walk, as well as 1/4 mile and 100 yard kids runs.
NF Midwest Great Steps Schedule
April 09 2012
Posted in Events - Current, NF Walks/Great Steps
This year NF Midwest has at least 6 opportunities in the Midwest to put your best foot forward and raise awareness and funds for neurofibromatosis.
Ashley’s Ride 2012
April 09 2012
Transcript available from “NF2 and Facial Reanimation” webinar
April 04 2012
Posted in Webinars
Read the full transcript here!
Senate Testimony FY2013
April 04 2012
Ironman 70.3 Boise
March 29 2012
Posted in Events - Current, Run4NF
Join Michael Freeman with the NF Network as he pursues competing in the Ironman 70.3 Boise to benefit the NF Network.
Register for the NF Network Webinar “NF1 and Aging”
March 29 2012
Posted in Webinars
Register now for this all new NF1 webinar “NF1 and Aging”
FY12 NFRP Program Announcements
March 26 2012
Posted in News
The FY12 NFRP Program Announcements have been released.
Congressional Testimony for FY2013
March 26 2012
NF Advocacy Video
March 11 2012
Posted in Advocacy, Videos
This video was done by the Manth Family, who’s daughter Leah, has NF2.
Watch our Webinar “NF1 and School Issues”
March 07 2012
Posted in Educational Meetings, Webinars
If you were not able to watch the webinar live, you can watch it here!
Read Learning Problems in NF1
March 06 2012
Posted in Educational Meetings
Read this informative paper on the learning issues associated with NF1.
Golf for NF with Washington State!
March 04 2012
Washington State NF 2012 Challenge 5K Walk/Run
March 04 2012
Posted in Events - Current, NF Walks/Great Steps
Washington State NF (WSNF) invites you to join them for their 2012 family Walk/Run/BBQ on Sunday, June 3rd at Marymoor Park in Redmond, WA.
Benefits of NF Research to the War Fighter
February 28 2012
Watch our webinar “Talk to your Congressman about NF Research”
February 27 2012
Posted in Webinars
Watch our webinar “Talk to your Congressman about NF Research”
NF Network’s Advocacy Site is now LIVE! Check it out!
February 23 2012
Posted in Advocacy, News
Check out NF Network’s brand new advocacy website!
NF Advocacy Fact Sheet
February 21 2012
Posted in Advocacy
Download the NF Advocacy Fact Sheet for use in Congressional meetings.
NF Network 2012 Webinar Schedule
January 29 2012
Posted in Events - Current, Educational Meetings, Webinars
See our webinar schedule for 2012 and save the dates!
See this fun video of Camp New Friends 2011!
January 09 2012
NFRP Consumers Making a Difference: Bev Oberlander
January 09 2012
Congress awarded Neurofibromatosis Research $12.8 million!
December 15 2011
Contribute to a Cure
December 15 2011
Watch the NF2 webinar with Scott Plotkin, MD
December 04 2011
Posted in Educational Meetings, Webinars
Watch the NF2 webinar now!
Development of a Neurofibromatosis Type 1 Quality of Life Study
November 16 2011
Join the Beauty Mark Nation!
November 10 2011
“Plan Finder” Reviews Medicare 2012 Plan Options
October 25 2011
NF Research Needs Your Voice!
October 19 2011
NF, Inc. Kansas/Central Plains 2nd Annual “Ask the Doctors”
October 10 2011
Nov. 19, Washington State NF Families “NF Ask the Doc Medical Symposium”
August 30 2011
Oct. 23, 2011, NF Symposium in Boston
August 02 2011
Posted in Events - Past
You don’t want to miss this Symposium for NF patients and families!
Oct. 2, 2011, NF, Inc. Northeast Steps2Cure NF in Manchester, NH
August 02 2011
Posted in Events - Past
Join NF, Inc. Northeast for their Steps2Cure NF walk on October 2, 2011!
8th Annual Ohio Gathering for NF2
August 01 2011
Posted in Events - Past
The dates are announced and the website is up for the 8th Annual Ohio Gathering!
NF, Inc. Minnesota Walk for a Cure
August 01 2011
Posted in Events - Past
Join NF, Inc. Minnesota on September 17, 2011 for an NF Walk!
Oct 08, 2011, NF, Inc. California NF Steps
August 01 2011
Posted in Events - Past
1st “NF Steps” Southern California Walk
Oct. 15, NF Midwest 2011 Symposium
August 01 2011
Watch our webinar “10 Things Everyone Should Know About Their NF1”
July 31 2011
July 23, South Jersey’s Second Annual Ride4NF
July 12 2011
Posted in Events - Past
Take part in the Second Annual Ride4NF Motorcycle Run!
Sept. 17, 2011, Great Steps for NF, Leeds, AL
May 31 2011
Posted in Events - Past
Join us In Leeds, Alabama for their 2nd Annual Great Steps for NF walk!
NF Camp in Michigan this August
May 25 2011
Heather’s Story
May 21 2011
NF, Inc. California 7th Annual “NF Steps”
May 16 2011
Kristi’s Story
May 06 2011
The Bukowski Family Story
May 06 2011
HELP US SECURE $16M FOR NF RESEARCH!
May 01 2011
Jaime’s Story
April 27 2011
Posted in Events - Past
NF Awareness and NF Donations today… will end NF suffering tomorrow. Will you help? Read the first of our 4NFstories selected to be featured during NF Awareness Month. These NF stories were selected to compete during the month of May for the most donations raised in a single month through Firstgiving.
Call to Action!
April 26 2011
$16 million for NF Research
April 18 2011
Acoustic Neuroma Association 20th National Symposium
April 18 2011
The NF Center at St. Louis Children’s Hospital launches Family Focused Educational Program
April 14 2011
Posted in Events - Past
Join the NF Center in St. Louis for fun and fellowship this May!
NF Mid-Atlantic Survivor Harbor 7 Race
April 10 2011
Host a Doodle Day Event!
April 05 2011
ESPN’s E:60 to Focus on Paco Rodriguez on 4/19
April 04 2011
“Rave Reviews for NF2 Webinar hosted by NF, Inc. Network”
April 02 2011
When I Dare to be Strong: An Art Show benefitting NF, Inc. Network
April 01 2011
Read this Article about Derek Brown’s participation in the Atlanta Marathon!
March 24 2011
Posted in News
Read an article about Derek Brown’s participation in the Atlanta Publix Marathon!
NF, Inc. Northeast Steps2CureNF on Cape Cod
March 21 2011
Posted in Events - Past
Walk for NF with NF, Inc. Northeast on Sunday, April 10th!
NF Midwest Great Steps for NF
March 17 2011
Posted in Events - Past
Join an NF Midwest Great Steps for NF Walk now in three locations !
NF Central Plains Rock for NF
March 15 2011
Posted in Events - Past
Join NF Central Plains for a different kind of event!
NF Midwest Ask the Doctors - 2 locations, 2 dates
March 15 2011
Posted in Events - Past
Sign-up for one of NF Midwest’s FREE Ask the Doctor sessions for NF Type 1.
Opening Options for Neurofibromatosis Type 2
February 16 2011
Posted in News
Read this article about The Galloway’s and their experience with Avastin.
Congressional Meetings Recap
February 09 2011
What is “CDMRP”, and why do we care?
February 09 2011
Update on the funding process for the Army’s NF Research Program fiscal 2011
January 13 2011
DOD NF Research Program Anticipated Funding for FIscal 2011
December 27 2010
Posted in News
Read about anticipated funding opportunities for Fiscal 2011.
NF, Inc. Public Service Announcement
November 23 2010
Posted in News
Listen to our new Public Service Announcement!
Run4NF Story: Derek Brown
September 17 2010
Posted in Run4NF
Derek Brown’s goal is to run a marathon in every state!
Run4NF story: Lisa Wilberding
September 17 2010
Posted in Run4NF
Lisa Wilberding is running in the Chicago Marathon. Find out why.
Neurofibromatosis, Inc. Michigan Educational Meeting, Nov. 20, 2010
September 01 2010
Neurofibromatosis, Inc. Network Schwannomatosis Webinar, November 17, 2010
September 01 2010
Aug. 28, NF, Inc. California Meet and Greet BBQ, Elk Grove, CA
August 25 2010
Posted in Events - Past
NFC invites you to their 2nd NF Chat with a Meet and Greet social BBQ!
Sept. 17-18, Neurofibromatosis, Inc. Symposium, Modesto, CA
August 19 2010
Posted in Events - Past
Join us for this unique opportunity to learn more about NF.
Sept. 25, Washington State NF Ask the Doc Medical Symposium, Seattle, WA
August 18 2010
Posted in Events - Past
You won’t want to miss this Ask the Doc!
Oct. 8-10, NF2 Crew Gathering, Columbus, OH
August 17 2010
Posted in Events - Past
Join us for the NF2 Crew Gathering in Ohio for “Christmas in October.”
Aug. 21, NF, Inc. California Chat, Tulare, CA
August 15 2010
Posted in Events - Past
Join us for this casual get together!
NF, Inc. Northeast Steps2Cure NF on September 26 in Woburn, MA
July 29 2010
Posted in Events - Past
Steps2Cure NF is a 2 mile walk and a 4 mile run around Horn Pond in Woburn, MA.
Friends Bike Ride for NF on September 11 in Cape Cod, MA
July 29 2010
NF, Inc. Chat on August 8, 2010 in Omaha, NE
July 27 2010
Posted in Events - Past
Join NF, Inc. on August 8th in Omaha, Nebraska for an NF Chat
NF, Inc. Kansas/Central Plains Ice Cream Social on August 8 in Wichita
July 25 2010
Posted in Events - Past
Come out for an afternoon of fun, friends and ice cream!
Pt. Story - Liz & Rachel Campana
July 16 2010
When the doctors told us Rach had NF, and we started to learn about everything that COULD happen to her, I was so scared.
NF2 in the News!
July 12 2010
NF Inc, Northeast Hickory Hill Golf Tournament on October 4, 2010 in Methuen, MA
July 09 2010
Meningioma Awareness Day 2010 on October 2, 2010 in Boston, MA
July 02 2010
NF, Inc. Northeast - NF Champions Grant
July 01 2010
NF Midwest Take A Swing at NF 12th Annual Golf Benefit on August 13, 2010 in West Chicago, IL
July 01 2010
Gracie changed our lives
Never Give Up! Never Quit!
NF1 is a journey of learning and compassion
