Pt. Story - Sally Richards

June 09 2010

Posted in Personal NF2 Stories

My name is Sally Richards, and I have Neurofibromatosis 2 (NF2). This is a genetic disorder in which tumors form on the nerves of the brain and spine (the central nervous system). I’ve lived with the uncertainties of NF2 for 25 years. Early after diagnosis, my challenges seemed insurmountable, but they proved to be stepping stones to a stronger future. I went from a shy, quiet individual to an articulate, outspoken professional.

I’ve decided to look at the challenges of NF2 as I would if NF2 were a business and I the CEO. I research and plan and strategize to ensure I make informed, well thought out decisions, rather than letting my heart or my emotions lead me. How do I do this? I work with wonderful organizations propelling action and accumulating resources towards the betterment of NF. I team up with local and the national organization along with the multi-disciplinary team of NF2 experts at Northwestern Memorial Hospital where Dr. Andrew Fishman is the central contact. 

The benefits of working with these organizations is two-fold: 1) I’m able to partner with individuals who work tirelessly to achieve a better life for those with NF and, 2) it’s life sustaining, guiding me and strengthening my journey through life.

My life focus is: “Prosperity is a lifestyle that includes spiritual fullness, physical well-being, mental soundness, social friendships and financial well-being. It’s possessing and stewarding wisely all that God gives to you.” I live the motto, “Patience is a virtue, but persistence to the point of success is a blessing