Oct. 15, NF Midwest 2011 Symposium

August 01 2011

Posted in Events - Past

Learn about the latest progress in NF research, current treatment options, and practical advice for living with NF.

Registration, continental breakfast and socializing begin at 8:00 am. The program will start at 8:45 am with an
Introduction to Neurofibromatosis.

Below are the tentative speakers and topics. Other topics and/or speakers will most likely be added. Please, check
back for updates.

This list is not in schedule order and speakers may be subject to change or cancellation.

The Crazy Mom Effort: Raising Your Voice in Awareness and Advocacy
Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy

The following breakout sessions run concurrently. Additional speakers or changes may be made.

Breakout #1/NF-1 Focus

Team NF: Integrating Research and Clinical Care
David H. Gutmann, MD, PhD, Director, NF Center, Washington University School of Medicine

Cognitive Issues in NF
Jill Isenberg, Ph.D , St. Louis Children’s Hospital, Dept of Psychology

Vascular Issues in Neurofibromatosis
Cynthia Hingtgen, MD, PhD, Indiana University

Gleevac in the Treatment of Plexiform Neurofibromas
Kent Robertson, MD, PhD, Indiana University

         
Breakout #2/NF-2 Focus

The Role of Chemotherapy in the Treatment of NF Related Brain Tumors
Jeffrey Raizer, MD,  Northwestern Brain Tumor Institute Director

Long-term Natural History of Cranial Tumors in Neurofibromatosis Type 2
Ashok Asthagiri, MD Neurological Surgery, NIH, Bethesda,

Treatment Options and Patient Care at Washington University NF2 Clinic
Michael Chicoine, MD, Dept. of Neurosurgery, Washington University School of Medicine

CI’s in NF2 Patients and a Possible ABI Program in the Future at Washington U.
Timothy Hullar, MD, Dept. of Otolaryngology , Washington University School of Medicine

Overview of Hearing Loss, Evaluation Procedures, Treatment Options (hearing aids and cochlear
implants), Rehabilitation and Resources for hearing-impaired individuals
Lisa Potts, Ph.D. Audiology, Washington U., St. Louis, MO

Teen Session (for children ages 12 to 18)
Learn about Learning — Presented by Dr. Jill Isenberg, neuropsychologist from St. Louis Children’s Hospital. This
session is for children 12 to 18 only (no adults allowed). Dr. Isenberg will answer questions and show the kids how
someone with NF might learn differently.

For more information and to register please visit the NF Midwest website.