Neurofibromatosis, Inc.

Pt. Story - Mike Forbes

June 16 2010

Posted in Personal NF1 Stories

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My life with NF is a journey of learning and growing into compassion. NF has led me down the road to operating rooms as a child and to educational centers for learning disabilities as a teenager. My career in case management for adults with multiple disabilities was directly connected to NF as this allowed me to deny Neurofibromatosis in my life. Instead I hid in the addictions of smoking, drinking, and helping others. Through the miracle of attending a Unitarian single camp in 2002 I gained personal insight into my own being. The massage class I took during this time forced me to show my tumor filled chest and back to others. No one became scared or ran away from the opportunity to learn about Michael Forbes and Neurofibromatosis. This camp was in many ways an intervention. Today Neurofibromatosis is part of me and I am free from the addictions that once ruled my life.


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