Pt. Story - Marie Drew
June 01 2010
Posted in Personal NF2 Stories
My name is Marie and my history goes back a long way, starting in 1975. I became totally deaf in 2000, and today I tell my friends I can’t hear, can’t walk right, can’t see very good, have trouble eating – but other than that, I am really quite healthy!
Those 35 years were a long journey – but support from other members of the NF2 community made it possible. When you meet others going through the same difficulties, and showing such courage, it inspires you. At the same time, I think I have learned as much from the experience and knowledge of my “fellow NF2ers” as I have from doctors.
In the 35 years since I was diagnosed, it is only in approximately the last five years that NF2 has really come on the radar screen. For the first time, young people with NF2 can truly have hope for light at the end of the tunnel.
