Development of a Neurofibromatosis Type 1 Quality of Life Study

November 16 2011

Posted in News

Indiana University is looking for adult and youth volunteers to take a survey about NF1 and how it affects your health and well being.  This study will help to better understand how NF1 affects your health and well being, and help to measure how well treatments for NF1 are working.  We need adults with NF1, parents of children with NF1 and young adults 14 years and older with NF1. The study consists of an online survey about NF1, what it is like to have NF1 and how it affects health and well being.  The study is completely anonymous and does not require any personal information.  To take the online survey choose one of the following:

Adults with NF1
Parents of children with NF1
Youth 14 years or older with NF1