News

NF Awareness Challenge!

April 29 2012

Posted in Events - Current, News

May is NF awareness month! Our goal this month is to encourage people to share their experiences with Neurofibromatosis!

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Join us on Twitter!

March 28 2012

Posted in News

Join the NF Network on twitter!

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FY12 NFRP Program Announcements

March 26 2012

Posted in News

The FY12 NFRP Program Announcements have been released.

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Visit our NF Network store!

March 19 2012

Posted in News

Get your NF gear now!

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Wonderful NF Cartoon

March 11 2012

Posted in News

Check out this NF cartoon from artst Fabio Coala.

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NF Network’s Advocacy Site is now LIVE!  Check it out!

February 23 2012

Posted in Advocacy, News

Check out NF Network’s brand new advocacy website!

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Contribute to a Cure

December 15 2011

Posted in News

The NF Network is requesting your help to raise much needed funds to improve the quality of life of individuals who are affected by Neurofibromatosis.

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Development of a Neurofibromatosis Type 1 Quality of Life Study

November 16 2011

Posted in News

Indiana University is looking for adult and youth volunteers to take a survey about NF1 and how it affects your health and well being.

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Join the Beauty Mark Nation!

November 10 2011

Posted in News

Neurofibromatosis (NF) affects three times as many people as cystic fibrosis and muscular dystrophy combined. Yet, most people have never heard of NF. We need to change that! The Beauty Mark Nation is rising up and joining forces to make a difference because – NF patients do matter and have stayed in the shadows for too long.

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“Plan Finder” Reviews Medicare 2012 Plan Options

October 25 2011

Posted in News

The Centers for Medicare & Medicaid Services (CMS) has launched access to its popular web-based “Medicare Plan Finder”

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ESPN’s E:60 to Focus on Paco Rodriguez on 4/19

April 04 2011

Posted in News

Paco Rodriguez died tragically on November 22, 2009. His “gift” was a vital liver that allows NF-Mid-Atlantic’s Meaghan Kingsley to live on while facing her battles with NF2.

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“Rave Reviews for NF2 Webinar hosted by NF, Inc. Network”

April 02 2011

Posted in News

NF, Inc. Network held an NF 2 webinar on April 5th which allowed participants to “Ask the Doctor”.  Dr. Scott R. Plotkin from the Neurofibromatosis Clinic at Massachusetts General Hospital presented on, research, diagnosing, treating and managing care for individuals with NF2.

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Read this Article about Derek Brown’s participation in the Atlanta Marathon!

March 24 2011

Posted in News

Read an article about Derek Brown’s participation in the Atlanta Publix Marathon!

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Opening Options for Neurofibromatosis Type 2

February 16 2011

Posted in News

Read this article about The Galloway’s and their experience with Avastin.

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DOD NF Research Program Anticipated Funding for FIscal 2011

December 27 2010

Posted in News

Read about anticipated funding opportunities for Fiscal 2011.

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NF, Inc. Public Service Announcement

November 23 2010

Posted in News

Listen to our new Public Service Announcement!

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NF2 in the News!

July 12 2010

Posted in News

Kristen D’Antonio, a 20-year old from Norristown, PA, will be featured in a Philadelphia Daily News Story about her life since being diagnosed with NF2 at the age of 17.

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NF, Inc. Northeast - NF Champions Grant

July 01 2010

Posted in News

NF, Inc., Northeast President, Dr. Paul Epstein announced the NF Champions Grant at the 25th Annual NF Golf Tournament.

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MTV True Life episode on NF airs April 26, 2010

April 26 2010

Posted in News

MTV’s True Life will be airing an episode on teens with Neurofibromatosis.

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Researchers Target Vascular Disease Linked to Cancer-Causing Gene Mutation

March 23 2010

Posted in News

Scientists from the Indiana University School of Medicine have found new information on the mutation that causes Neurofibromatosis Type-1.

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Further Genotype-Phenotype Correlations in Neurofibromatosis Type 2

March 08 2010

Posted in News

A comparison between the clinical presentations of patients with mutations that are predicted to produce truncated protein to those that results in loss of protein expression to elucidate further genotype-phenotype correlations in NF2.

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Gillian Anderson donates memorabilia for eBay Auction

March 01 2010

Posted in News

Actress Gillian Anderson, known for her roles in X-Files, Bleak House, Last King of Scotland and other stage and screen projects, is currently offering items for auctioning to benefit NF, Inc.

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Researchers Discover New Way to Kill Pediatric Brain Tumors

February 09 2010

Posted in News

Researchers now have a previously unrecognized target, STAT3, at which they can “aim” new drugs for the treatment of cancer in Neurofibromatosis-1 (NF1).

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