Advocacy

Senate Testimony FY2013

April 04 2012

Posted in Advocacy

Senate testimony submitted for the record on behalf of the Neurofibromatosis Network for FY2013

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Congressional Testimony for FY2013

March 26 2012

Posted in Advocacy

Read testimony submitted for the record on behalf of the Neurofibromatosis Network for FY2013

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NF Advocacy Video

March 11 2012

Posted in Advocacy, Videos

This video was done by the Manth Family, who’s daughter Leah, has NF2.

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Advocacy FAQs

February 28 2012

Posted in Advocacy

Answers to commonly asked advocacy questions.

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Benefits of NF Research to the War Fighter

February 28 2012

Posted in Advocacy

Neurofibromatosis Research addresses areas of great clinical need directly affecting the health of the war fighter.

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NF Network’s Advocacy Site is now LIVE!  Check it out!

February 23 2012

Posted in Advocacy, News

Check out NF Network’s brand new advocacy website!

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NF Advocacy Fact Sheet

February 21 2012

Posted in Advocacy

Download the NF Advocacy Fact Sheet for use in Congressional meetings.

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NFRP Consumers Making a Difference: Bev Oberlander

January 09 2012

Posted in Advocacy

Read Bev’s personal story!

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Congress awarded Neurofibromatosis Research $12.8 million!

December 15 2011

Posted in Advocacy

We are pleased to announce that Congress awarded $12.8 million to the Neurofibromatosis Research Program (NFRP) for fiscal 2012

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NF Research Needs Your Voice!

October 19 2011

Posted in Advocacy

In July, the House of Representatives passed their FY2012 Defense Appropriations Bill which included $12.8 million for the Army’s NF Research

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HELP US SECURE $16M FOR NF RESEARCH!

May 01 2011

Posted in Advocacy

We need you to help us advance NF Research! Thank you for your help with Congress, we now need your help with the Senate.

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Call to Action!

April 26 2011

Posted in Advocacy

Congressman Gutierrez’s office sent out a Dear Colleague letter today asking for member of Congress to sign onto two letters supporting NF research.

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$16 million for NF Research

April 18 2011

Posted in Advocacy

NF, Inc. Network is pleased to announce that Congress has appropriated $16 million through the Department of Defense’s Army’s NF Research Program for fiscal year 2011.

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Congressional Meetings Recap

February 09 2011

Posted in Advocacy

NF, Inc. visited Washington on January 31st and February 1st, meeting with many Congressional offices.

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What is “CDMRP”, and why do we care?

February 09 2011

Posted in Advocacy

CDMRP stands for Congressionally Directed Medical Research Programs, find out what this means for NF.

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Update on the funding process for the Army’s NF Research Program fiscal 2011

January 13 2011

Posted in Advocacy

Explains how appropriation process for Congress has affected the typical funding schedule for the Army’s NF Research Program.

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Acquiring Federal Funding

September 27 2010

Posted in Advocacy

Check out where we are!

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